Tag Archives: gnb1

Spanish Parents rally for Rare Genetic Disorder Support through Music, Food, and Hope

Music, Food and Hope: Spanish Parents Rally Support for Rare Genetic Disorder

A SPANISH family is leading an extraordinary grassroots campaign to fund research into a rare genetic disorder that affects just over 100 people worldwide – including their five-year-old daughter, Lea. Through their restaurant, the Levante Street Food Bar in Los Caños de Meca (Cadiz), parents Alfonso Cabilla, 44, and Begoña, 43, are organising the Levante Aid Fest – a lively, …

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